As a support organization and the translational arm of the Foundation Fighting Blindness, it aims to develop a bridge between scientific, clinical, governmental, pharmaceutical and financial communities to advance clinical trials of sight-saving treatments and therapies. Fax: 416.360.0060. The urgent mission of the Foundation Fighting Blindness is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa, age-related macular degeneration, Usher syndrome and the entire spectrum of retinal degenerative diseases. Foundation-funded scientists at institutions throughout the world conduct research for the entire spectrum of retinal degenerative diseases including: retinitis pigmentosa, macular degeneration, Usher syndrome, Stargardt disease, Best disease, choroideremia, retinoschisis, Leber congenital amaurosis, Bardet–Biedl syndrome, cone dystrophy, cone-rod dystrophy, rod–cone dystrophy, achromatopsia, Refsum disease, and other rare retinal degenerative diseases. ProQR has teamed up with the Foundation Fighting Blindness to provide no-cost genetic testing to inherited retinal disease patients in the United States. This site utilizes popup windows. Foundation Fighting Blindness receives 85.99 out of 100 for their Charity Navigator rating. Join the fight and help us … Share. For nearly 50 years, the Foundation Fighting Blindness has been the pioneer in innovative retinal disease research. After decades of Foundation-funded research, several promising treatments have moved into human clinical trials, including a landmark gene therapy human study for Leber congenital amaurosis, which has enabled more than 40 children and young adults who were virtually blind to read several lines on an eye chart and see in dimly lit settings. [4] Through its communications and public health outreach programs, the Foundation educates individuals affected with retinal disease and their families about research developments, clinical trials, and coping with low vision. [5] This success paved the way for the development of gene therapies now in clinical trials to treat a wide range of other retinal conditions, including Stargardt disease, Usher syndrome, and age-related macular degeneration. To commemorate our beloved John Hoffman please consider helping to cure blindness by funding many upcoming research projects. The urgent mission of The Foundation Fighting Blindness is to drive the research that will provide preventions, treatments, and cures for people affected by retinitis pigmentosa, macular degeneration, Usher syndrome and the entire spectrum of retinal degenerative diseases. The Foundation is also funding clinical trials of a tiny innovative capsule that is inserted into the eye to slow vision loss from a variety of retinal degenerative diseases.[6]. Fundraiser Casey Skinner. The mission of the Foundation Fighting Blindness is to fund research that will lead to the prevention, treatment and cures for the entire spectrum of retinal degenerative diseases, including retinitis pigmentosa, macular degeneration, Usher syndrome, Stargardt disease and related conditions. Valproic acid, a drug that is FDA-approved to treat epilepsy, has shown promise for preserving vision in people with certain forms of retinitis pigmentosa. Foundation Fighting Blindness. 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